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April Newsletter
Looking at news from around the world, I am feeling grateful ...but also acknowledge that it is a very stressful time for many here also.
TSCNZ
Apr 13, 20201 min read
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Coronavirus and TSC: Information for the TSC community
Thanks to TS Australia and their medical experts for this information: We know that like everyone, our TSC community is being flooded...
TSCNZ
Mar 18, 20202 min read
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Feb Newsletter
The Feb TSCNZ newsletter is on our Resources page ... includes ... positive news from Pharmac, Sydney conference, "Fair for Rare" campaign.
TSCNZ
Feb 18, 20201 min read
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Nov Newsletter
The Nov 2019 newsletter is now up on the site - sorry for the delay. You can find it on our Resources page along with all our old...
TSCNZ
Jan 28, 20201 min read
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It's AGM Time - Followed by Dinner
All are welcome to attend the TSCNZ AGM on Saturday 15 June @ 4pm at the Owen G Glenn building in Auckland followed by a casual dinner at...
TSCNZ
Jun 12, 20191 min read
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May Newsletter
The May newsletter is now up on the site. You can find it on our Resources page along with all our old newsletters. That page has...
TSCNZ
Jun 11, 20191 min read
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Global Awareness Day 15th May 2019
We are promoting two TSC Global awareness day events here in NZ: For those who want to compete or support someone in The Nugget - Dig...
TSCNZ
Apr 20, 20191 min read
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TSC National Conference 2018
We're delighted to be able to share the links to the videos from many of the excellent presentations at the TSC National Conference 2018....
TSCNZ
Oct 22, 20181 min read
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JOIN US: TSC National Conference '18
An opportunity for individuals, families and professionals in the Tuberous Sclerosis Complex community to learn more about TSC from a...
TSCNZ
May 20, 20181 min read
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TSC Global Awareness Day
May 15th is the 2018 In the run-up to this event, starting tomorrow, we will be posting 15 TSC facts each day. There are also three...
TSCNZ
May 14, 20181 min read
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GOODBYE TO AN ANGEL
We are deeply saddened to hear that passed away on Monday. Tonya was one of our TSC Champions – she supported us, guided us, gave us hope...
TSCNZ
May 8, 20181 min read
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KNOW THE SIGNS
Often one of the first seizure types in babies with TSC, check out this clear, accurate video to mark infantile spasms week. These...
TSCNZ
May 8, 20181 min read
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Amazing story from Australia.
When Cynara Stalenhoef’s husband was diagnosed with a rare genetic condition that affected his kidney’s she immediately offered to donate...
TSCNZ
May 8, 20181 min read
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'TSC - hard to say, more difficult to live with
Share this video with your friends, Twitter followers, etc. We want to reach as many people as we can. TSC is a rare genetic disease...
TSCNZ
May 8, 20181 min read
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