UPCOMING Events
15 may 2025
TSC global awareness day
On 15th May each year, TSC organisations around the world campaign to
raise awareness and understanding of TSC and its impacts.
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​The TSC International Website has a great set of resources to support involvement and their Facebook page has TSC Facts that you can share with your friends and family.
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Tea & SCones for Global Awareness Day
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The idea for Tea & SCones comes from the TSA in the UK.
It's great way to let people know about TSC and raise money by hosting a morning or afternoon tea for family, friends, neighbours or colleagues.
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You can print or send out our TSCNZ fundraising sheet
to let people know why you're raising money and how they can donate.​
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Whatever way you choose to mark the day,
don't forget to share photos with us on our Facebook page or send them to info@tsc.org.nz so that we can include them in the next Newsletter and on the website.
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We teamed up with Rare Disorders NZ for some joint picnics/get togethers.
It was lovely to meet families affected by TSC and other rare disorders.
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In Auckland, TSCNZ Committee member and Secretary Tom was joined by Rare Disorders NZ Board Chair James.
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Helen and Leah were joined by families from the Waikato in Tirau.
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Earlier, Community Organiser Lisa attended the Rare Disorders NZ 25th Anniversary Awards Ceremony and was a judge at the Rare Beer Challenge.
March 2025
TSCNZ & Rare Disorders NZ Glow Up Show Up events
Call us for Questions
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+6421 154 7017
Volunteer Your Time
We'd love to hear from you and suggest effective ways you can assist our organisation!