UPCOMING Events
Coffee catch-up in Christchurch
October 11 from 10.30am
TSCNZ Annual general meeting 2025
The Annual General Meeting of the Society was held on Monday 4th August 2025.
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​2025/2026 Office Holders:
President - Helen Willacy, Secretary - Tom Maling, Treasurer - TBC
TSCNZ President Helen Willacy will be at Terra Viva Cafe, 242 Roydvale Avenue, Burnside, Christchurch from 10:30am on Saturday 11th October and would love to meet up with Canterbury based individuals and families living with TSC for a coffee and a chat.
The management committee are looking at planning our next national conference in Christchurch in October 2025 so we would really appreciate some ideas about venues, speakers, funders and any other local knowledge. Please email info@tsc.org.nz if you are planning to come along.
We teamed up with Rare Disorders NZ for some joint picnics/get togethers.
It was lovely to meet families affected by TSC and other rare disorders.
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In Auckland, TSCNZ Committee member and Secretary Tom was joined by Rare Disorders NZ Board Chair James.
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Helen and Leah were joined by families from the Waikato in Tirau.
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Earlier, Community Organiser Lisa attended the Rare Disorders NZ 25th Anniversary Awards Ceremony and was a judge at the Rare Beer Challenge.
March 2025
TSCNZ & Rare Disorders NZ Glow Up Show Up events
Call us for Questions
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+6421 154 7017
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