TSCNZ President, Helen, was nominated for a Rare Disorders 25th Anniversary award. Awards were presented at a special ceremony at...

Tom, our wonderful TSCNZ Secretary is climbing Mt Maling [height 1825 metres] in the South Island to raise money for TSC. We're...

TSCNZ Newsletter Feb 2025 In this issue: Disability Support Services Consultation Rare Disease Day 28th Feb TSCNZ/Glow Up Show Up events...

Check your inboxes or click this link for all our latest news about get togethers for Rare Disorders Month on 8 March 2025, Bear's...

Come and join us in person at Crave Cafe in Auckland or online at the TSCNZ AGM at 2pm on Saturday 10th August. Email info@tsc.org.nz to...

Go to our Newsletters and Resources page for our latest newsletter or click on this link. Find out about your chance to support TSCNZ and...

Click on this link for all the latest news - AGM Report, Website update, Membership request, Rare Disorders NZ Survey, TSC Chats,...

Check out the July newsletter for details of our upcoming AGM on Zoom on the 7th August, Conference news and videos, Epilepsy NZ survey...

Don't miss out! Registrations for the NZ TSC Conference this coming Saturday close on Wednesday 10th May. See you in Auckland! Follow...

Our April newsletter is out now! Click on this link for all the information about our upcoming conference to mark Global Awareness Day,...

Conference registrations and applications for travel & accommodation grants are now open. Click on the eventbrite link for all the...

Our November newsletter is out now at this link! Lots of news and some important upcoming dates including our next national conference on...

The July E-News is out now with all the details of our AGM to be held on Sunday 7th August at the Auckland Botanic Gardens, a report on...

As the country and world open up again, we thought it would be a good time to take stock of where we are as an organisation. TSCNZ aims...

Lots of news in our latest newsletter which is out now including Te Aroha Music Festival, TSCNZ Survey, Committee News, Membership...

Almost 200 of these wonderful, informative resources for newly diagnosed individuals and families have been sent out to families,...

Our April Newsletter is out. It covers a range of things including the Global Awareness day on May 15th and the Onlin e conference that...

Please see our latest MailChimp newsletter. It includes items on: Progress on Funding of Sirolimus, Research News, Global Awareness Day,...

Online Awareness Campaign We hope you have come through Level 4 as well as possible. Although we are still unable to meet in person, we...

Looking at news from around the world, I am feeling grateful ...but also acknowledge that it is a very stressful time for many here also.