News | TSCNZ

TSCNZ NEWS:

May 14, 2021
1 min

April Newsletter - Awareness day and online conference ...

Our April Newsletter is out. It covers a range of things including the Global Awareness day on May 15th and the Onlin e conference that...

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TSCNZ

Dec 5, 2020
1 min

November Newsletter Out Now

Please see our latest MailChimp newsletter. It includes items on: Progress on Funding of Sirolimus, Research News, Global Awareness Day,...

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TSCNZ

May 9, 2020
1 min

TSC Global Awareness Day - May 15

Online Awareness Campaign We hope you have come through Level 4 as well as possible. Although we are still unable to meet in person, we...

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TSCNZ

Apr 12, 2020
1 min

April Newsletter

Looking at news from around the world, I am feeling grateful ...but also acknowledge that it is a very stressful time for many here also.

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Coronavirus and TSC: Information for the TSC community

TSCNZ

Mar 18, 2020
2 min

Coronavirus and TSC: Information for the TSC community

Thanks to TS Australia and their medical experts for this information: We know that like everyone, our TSC community is being flooded...

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TSCNZ

Feb 18, 2020
1 min

Feb Newsletter

The Feb TSCNZ newsletter is on our Resources page ... includes ... positive news from Pharmac, Sydney conference, "Fair for Rare" campaign.

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TSCNZ

Jan 27, 2020
1 min

Nov Newsletter

The Nov 2019 newsletter is now up on the site - sorry for the delay. You can find it on our Resources page along with all our old...

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TSCNZ

Jun 12, 2019
1 min

It's AGM Time - Followed by Dinner

All are welcome to attend the TSCNZ AGM on Saturday 15 June @ 4pm at the Owen G Glenn building in Auckland followed by a casual dinner at...

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TSCNZ

Jun 11, 2019
1 min

May Newsletter

The May newsletter is now up on the site. You can find it on our Resources page along with all our old newsletters. That page has...

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TSCNZ

Apr 20, 2019
1 min

Global Awareness Day 15th May 2019

We are promoting two TSC Global awareness day events here in NZ: For those who want to compete or support someone in The Nugget - Dig...

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TSCNZ

Oct 22, 2018
1 min

TSC National Conference 2018

We're delighted to be able to share the links to the videos from many of the excellent presentations at the TSC National Conference 2018....

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TSCNZ

May 20, 2018
1 min

JOIN US: TSC National Conference '18

An opportunity for individuals, families and professionals in the Tuberous Sclerosis Complex community to learn more about TSC from a...

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TSCNZ

May 13, 2018
1 min

TSC Global Awareness Day

May 15th is the 2018 In the run-up to this event, starting tomorrow, we will be posting 15 TSC facts each day. There are also three...

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TSCNZ

May 7, 2018
1 min

GOODBYE TO AN ANGEL

We are deeply saddened to hear that passed away on Monday. Tonya was one of our TSC Champions – she supported us, guided us, gave us hope...

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TSCNZ

May 7, 2018
1 min

KNOW THE SIGNS

Often one of the first seizure types in babies with TSC, check out this clear, accurate video to mark infantile spasms week. These...

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TSCNZ

May 7, 2018
1 min

Amazing story from Australia.

When Cynara Stalenhoef’s husband was diagnosed with a rare genetic condition that affected his kidney’s she immediately offered to donate...

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'TSC - hard to say, more difficult to live with

TSCNZ

May 7, 2018
1 min

'TSC - hard to say, more difficult to live with

Share this video with your friends, Twitter followers, etc. We want to reach as many people as we can. TSC is a rare genetic disease...

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TSCNZ NEWS:

April Newsletter - Awareness day and online conference ...

November Newsletter Out Now

TSC Global Awareness Day - May 15

April Newsletter

Coronavirus and TSC: Information for the TSC community

Feb Newsletter

Nov Newsletter

It's AGM Time - Followed by Dinner

May Newsletter

Global Awareness Day 15th May 2019

TSC National Conference 2018

JOIN US: TSC National Conference '18

TSC Global Awareness Day

GOODBYE TO AN ANGEL

KNOW THE SIGNS

Amazing story from Australia.

'TSC - hard to say, more difficult to live with

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