Online Awareness Campaign We hope you have come through Level 4 as well as possible. Although we are still unable to meet in person, we h...

Looking at news from around the world, I am feeling grateful ...but also acknowledge that it is a very stressful time for many here also.

Thanks to TS Australia and their medical experts for this information: We know that like everyone, our TSC community is being flooded wit...

The Feb TSCNZ newsletter is on our Resources page ... includes ... positive news from Pharmac, Sydney conference, "Fair for Rare" campaign.

The Nov 2019 newsletter is now up on the site - sorry for the delay. You can find it on our Resources page along with all our old newsl...

All are welcome to attend the TSCNZ AGM on Saturday 15 June @ 4pm at the Owen G Glenn building in Auckland followed by a casual dinner at...

The May newsletter is now up on the site. You can find it on our Resources page along with all our old newsletters. That page has som...

We are promoting two TSC Global awareness day events here in NZ: For those who want to compete or support someone in The Nugget - Dig Dee...

We're delighted to be able to share the links to the videos from many of the excellent presentations at the TSC National Conference 2018....

An opportunity for individuals, families and professionals in the Tuberous Sclerosis Complex community to learn more about TSC from a ran...

May 15th is the 2018 In the run-up to this event, starting tomorrow, we will be posting 15 TSC facts each day. There are also three speci...

We are deeply saddened to hear that passed away on Monday. Tonya was one of our TSC Champions – she supported us, guided us, gave us hope...

Often one of the first seizure types in babies with TSC, check out this clear, accurate video to mark infantile spasms week. These seizur...

Share this video with your friends, Twitter followers, etc. We want to reach as many people as we can. TSC is a rare genetic disease affe...