TSCNZMay 91 minTSC Global Awareness Day - May 15Online Awareness Campaign We hope you have come through Level 4 as well as possible. Although we are still unable to meet in person, we hope you will join wi...
TSCNZApr 121 minApril NewsletterLooking at news from around the world, I am feeling grateful ...but also acknowledge that it is a very stressful time for many here also.
TSCNZMar 182 minCoronavirus and TSC: Information for the TSC communityThanks to TS Australia and their medical experts for this information: We know that like everyone, our TSC community is being flooded with many sources of in...
TSCNZFeb 181 minFeb NewsletterThe Feb TSCNZ newsletter is on our Resources page ... includes ... positive news from Pharmac, Sydney conference, "Fair for Rare" campaign.
TSCNZJan 271 minNov NewsletterThe Nov 2019 newsletter is now up on the site - sorry for the delay. You can find it on our Resources page along with all our old newsletters. That page ...
TSCNZJun 12, 20191 minIt's AGM Time - Followed by DinnerAll are welcome to attend the TSCNZ AGM on Saturday 15 June @ 4pm at the Owen G Glenn building in Auckland followed by a casual dinner at a nearby Italian re...
TSCNZJun 11, 20191 minMay NewsletterThe May newsletter is now up on the site. You can find it on our Resources page along with all our old newsletters. That page has some great resources fo...
TSCNZApr 20, 20191 minGlobal Awareness Day 15th May 2019We are promoting two TSC Global awareness day events here in NZ: For those who want to compete or support someone in The Nugget - Dig Deep for TSCNZ For thos...
TSCNZOct 22, 20181 minTSC National Conference 2018We're delighted to be able to share the links to the videos from many of the excellent presentations at the TSC National Conference 2018. Thanks to Nicky & B...
TSCNZMay 20, 20181 minJOIN US: TSC National Conference '18An opportunity for individuals, families and professionals in the Tuberous Sclerosis Complex community to learn more about TSC from a range of speakers inclu...
TSCNZMay 13, 20181 minTSC Global Awareness DayMay 15th is the 2018 In the run-up to this event, starting tomorrow, we will be posting 15 TSC facts each day. There are also three special frames that you c...
TSCNZMay 7, 20181 minGOODBYE TO AN ANGELWe are deeply saddened to hear that passed away on Monday. Tonya was one of our TSC Champions – she supported us, guided us, gave us hope and supplied us wit...
TSCNZMay 7, 20181 minKNOW THE SIGNS Often one of the first seizure types in babies with TSC, check out this clear, accurate video to mark infantile spasms week. These seizures can look so subtl...
TSCNZMay 7, 20181 minAmazing story from Australia.When Cynara Stalenhoef’s husband was diagnosed with a rare genetic condition that affected his kidney’s she immediately offered to donate one of her own beca...
TSCNZMay 7, 20181 min'TSC - hard to say, more difficult to live withShare this video with your friends, Twitter followers, etc. We want to reach as many people as we can. TSC is a rare genetic disease affecting 1 million peop...