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Coronavirus and TSC: Information for the TSC community

Thanks to TS Australia and their medical experts for this information:

We know that like everyone, our TSC community is being flooded with many sources of information about coronavirus (also known as Covid-19). If you or a member of your family have TSC, you may have questions or feel anxious about how the virus may affect you.

Having TSC does not make you more likely than anyone else to catch coronavirus, and it does not necessarily mean that you are at greater risk of developing severe symptoms.

However, if you have TSC and are in one or more of the following groups then your symptoms might be more severe if you do contract the virus:

  • you are taking everolimus or sirolimus tablets or liquid

  • you have lymphangioleiomyomatosis (LAM) or reduced lung function

  • you have refractory epilepsy

If you are taking everolimus or sirolimus tablets or liquid, we recommend you might want to speak with your doctor for advice on how to best manage your situation.

Staying up to date with the latest information

As you will already have seen, the information on Coronavirus is fast-changing. We recommend you get the latest information from the Ministry of Health and keep up to date with their advice. Their recommendations and advice cover people with immunosuppression and people with comorbid conditions.

If you need to speak to someone about Coronavirus, please call Coronavirus Healthline on 0800 358 5453.

It's free and available 24 hours a day, 7 days a week.

Note: Healthline's main number for non-coronavirus health concerns is 0800 611 116.

These contact numbers will connect you to professional health advice and information.

Other useful resources include:

We hope you and your family and friends all remain safe and well during this time.

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