TSC Stories
A big thank you to the New Zealanders affected by TSC who have kindly shared their stories with us.
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Whether you live with TSC or have family/friends with TSC, we would love to hear from you.
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You can send us your story using a video, audio recording or as text to info@tsc.org.nz
Leah's story
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Leah is a founding member of TSCNZ is on the Management Committee.
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In this video, Leah shares her journey of living with TSC, what the support of the community means to her and how she gives back through voluntary work and supporting others.
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You contact Leah via info@tsc.org.nz and watch more of Leah's videos about TSC here: Leah Bos - YouTube
Lisa's story
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Lisa joined the TSCNZ Management Committee in 2015, she is now our Community Organiser.
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In this video, Lisa talks about how she became involved with TSC through her research work in the UK and how she came to be on the TSCNZ Commitee.
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You can contact Lisa at lisa@tsc.org.nz and watch other videos of her presenting research here: Understanding and diagnosing TSC Associated Neuropsychiatric Disorders (TAND) - Lisa Underwood Lisa Underwood Managing TAND COMPASS Research UoA - YouTube
Tom's story
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Tom joined the TSCNZ Management Committee in 2021, he is now our Secretary and social media guru.
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In this video, Tom talks about his sister Jo who lived with TSC and the importance of TSCNZ to the community.
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You can contact Tom at secretary@tsc.org.nz and check out his TSCNZ posts on our Instagram
Helen's story (2016)​
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Helen is the President of TSCNZ, she established the charity back in 2014, she has an adult son with TSC.
These slides have been adapted from a journal article written by Helen in 2016 and published in Advances in Autism. The paper described one family’s journey from diagnosis to the present.​
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You can contact Helen at president@tsc.org.nz
