Kia ora members and supporters,
We're pleased to share with you the first TSCNZ newsletter of the year. You can find it on our Resources page along with all our old newsletters.
There are some great updates in here, including:
Positive news from Pharmac's review of the use of mTOR inhibitors for the treatment of complications associated with TSC.
Details on the upcoming conference in Sydney. Check out how we may be able to help get you to Australia this May to hear about the latest research and treatments. Y
our invitation to Rare Disorders NZ's Fair for Rare campaign launch in Wellington on February 28.
Happy reading. Frances Morton Secretary Tuberous Sclerosis Complex New Zealand