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In our bid to fulfil our mission to inform, connect and support the TSC community in New Zealand, we invite you to become a financial member of Tuberous Sclerosis Complex NZ!

For an annual Donation, You'll support the work of our organisation to help in the following ways:​

  • Provide email and phone support for TSC affected individuals, families and healthcare professionals

  • Hold conferences and seminars for families and healthcare professionals

  • Advocate to improve access to best practice care

  • Maintain an up-to-date website of TSC related information and resources

  • Publish an email newsletter

  • Contribute to Reach Out

  • Host a Facebook page at

  • Support TSC research activity in NZ


Tuberous Sclerosis Complex New Zealand is primarily run by volunteers and there are many opportunities to get involved. Most work is done from home and meetings are by teleconference, so geography is no barrier.


Perhaps you could contribute through one of these ongoing volunteering roles:


  • Management Committee members: The committee meets bi-monthly usually by video conferece and directs the activities of TSCNZ.

  • Local activities: Organising events locally to connect with TSC families in your area

  • Fundraising: Every effort, big or small, helps. We can support you through provision of posters, printed material, receipting for tax purposes and ideas to get you started.

Thank you! We will get back to you soon.


No matter how small, leaving something to TSCNZ will really make a difference for New Zealanders living with TSC. 

When you include a bequest in your will, you have the option of leaving a specific amount, an item or a percentage of your estate to TSCNZ. It is important to consult your solicitor, Guardian Trust or Public Trust office for advice in drawing up your will. Bequests for 'General Purposes' allow us to use these gifts where most needed.


In Memory of a loved one

  • A thoughtful way to honour someone whose life has been affected by TSC is to ask family and friends to make a donation in their memory, or in lieu of flowers. These generous, encouraging donations help fund our work for all those who live with TSC. 

  • To find out how to go about this, or if you would like more information about making a donation or bequest to TSCNZ, please email or call us on 021 154 7017.

Donate Online

Call us for Questions

+64 21 154 7017

Volunteer Your Time

We'd love to hear from you and suggest effective ways you can assist our organisation!

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