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November Newsletter Out Now

Please see our latest MailChimp newsletter.


It includes items on: Progress on Funding of Sirolimus, Research News, Global Awareness Day, Fair for Rare Campaign, New Brochure, Mail Chimp Newsletter


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October Newsletter is in inboxes now

Click on this link for all the latest news - AGM Report, Website update, Membership request, Rare Disorders NZ Survey, TSC Chats, Research News and more.

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