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TSC National Conference 2023

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Join us at this wonderful opportunity for individuals, families and professionals in the Tuberous Sclerosis Complex community to network and learn more about TSC.

Learn more about TSC from a range of medical professionals and those with lived experience. To date we have speakers confirmed on TSC and the kidneys, transition, neurology and TAND. A full programme will be released in early 2023.

This conference provides a unique opportunity for TSC-affected families and adults to hear from and ask questions of expert TSC health professionals and to connect with and learn from each other.

Feedback from our last national conference in 2018:

"We found that learning the latest in knowledge about TSC that has been researched and experienced was really interesting."

"Thanks for holding and organising this year's conference, I have come away a lot more informed of TSC and what steps to take for ongoing management. A great bunch of people and we look forward to attending the next one."

"So important and valuable to connect with other families!!!"

"The guest speakers' subjects were relevant and they were open to questions which was great."


Where and When?

Auckland CBD – Mezzanine and Kahurangi Room, Parkside Hotel & Apartments, 100 Greys Avenue, Auckland, 1010

9.00am – 5.30pm – includes morning tea, lunch and afternoon tea. Optional conference dinner to follow. There will be time for questions and plenty of refreshment breaks.

What are my transport/parking options for getting to and from the event?

Parks are available for those staying at the venue. The Civic Car Park is close by. The venue is also on public transport links. Visit to plan your route or download the AT mobile app.

How can I contact the organiser with any questions?

Contact or visit our facebook page

What does the conference fee cover?

The event fee of just $45 will cover catering on the day and processing fees. The event has otherwise been funded by donations and grants to TSCNZ. Speakers have generously volunteered their time to speak at this event.

If you would like to attend the conference dinner at nearby Joy Bong Thai Restaurant & Bar there is an additional cost of $50. This is also subsidised by our generous sponsors.

Please email to let us know of dietary requirements.

How can I pay?

Click on this link to register through Eventbrite. You can pay by credit/debit card, or online. If you would like to pay by online banking, select the "cheque" option on the payment method drop down menu and the instructions for payment will pop up.

Can I get financial assistance?

Yes, TSCNZ has received a grant from Christchurch Casinos Charitable Trust and other generous donations to provide travel and accommodation grants for those needing to travel to attend the Auckland event.

South Islanders are eligible for up to $600 pp.

North Islanders are eligible for up to $400 pp.

For information on support with travel and accommodation costs or for other requests for financial support to attend the event in Auckland, please email Follow this link for more information about travel grants. There are a limited number so please apply as soon as possible. Please contact TSCNZ if the registration fees are a barrier to attending the conference. There may be some sponsorship available.

What's the refund policy?

Attendees can receive refunds up to 7 days before the event. We realise life with TSC can throw curve balls and a refund may be able to be given closer to the event at the organisers' discretion.

Is there access for people with physical disabilities?

Yes. Please let us know if additional support is required.

What accommodation options are nearby?

Parkside Hotel and Apartments has accommodation available. Please contact them to book. Alternatively, the CBD has a large range of accommodation options available. It is advisable to book early as supply is limited.

Please spread the word to your family, colleagues and contacts in the TSC world. See you in Auckland 2023!


Donate Online

Call us for Questions

+6421 154 7017

Volunteer Your Time

We'd love to hear from you and suggest effective ways you can assist our organisation!

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